OUR CUSTOMERS
The Finnish Hematology Registry and Biobank
Kimmo Porkka, Chief Physician, Professor of Clinical Hematology at HUCH, Comprehensive Cancer Center, division of hematology and Hematology Research Unit, University of Helsinki
“The treatment of hematological disorders will develop only through long-term basic and clinical research. In order to ensure that this development is as efficient as possible and produces new knowledge, we need national and international networking between units treating patients and basic research units. This need is met by the Finnish Hematology Registry (FHR) and Clinical Biobank (FHRB), a national development project for the registration, diagnostics and treatment of hematological disorders. During the project, a centralized, national, population-based quality, treatment and research registry is set up on the basis of patient consent. Data is collected into the registry during the diagnosis and follow-up of patients with hematological disorders, including the provided treatment and response.“
Lung factor, Idiopathic pulmonary fibrosis (IPF) research group
Marjukka Myllärniemi, Adjunct Professor, Academy Research Fellow
“The aim of our research is to compile a comprehensive registry of Finnish idiopathic pulmonary fibrosis patients. This would not be possible without a safe, user-friendly registry platform, which may be accessed from every Finnish hospital using a web browser. The registry serves as a bridging tool between various case record systems and the treatment registries of hospitals. At present, we use the registry to collect basic information about the rare, severe disorder, but in future we may be able to extend the use of the registry to include e.g. self-monitoring by the patient.“